Bel's Big red Westival

By Belinda Peri Join Me

In 2017-18, 1.0% of Australians, 237,800 people are documented as having Kidney Failure (KF) by the Australian government. That number has remained pretty stable, however our indigenous population are at twice the risk for developing KF.  

There is no cure. Dialysis or a kidney transplant are needed to stay alive.

In Nov 2019 I developed acute KF and was  on daily home dialysis the following May.

It was  an incredible shock to me and Tony and despite being an RN I had little to no  knowledge of KF and the toll it would take on our lives. Tony and I approached all the changes together - we are a team! However I had many complications and the path was not straightforward.

Almost immediately I knew I was going to need a Kidney Transplant down the track. The wait time can be 3 to 7 years for most and longer for others. I was really surprised at how little knowledge there was about KF in the public space and further, how little money was allocated and raised for research. Treatment for KF has remain almost unchanged for 40+ years.  

On July 1, 2022, I received a deceased donor kidney transplant under the team at Westmead Hospital. It is one of the hardest things I have gone through, but four months down the track I feel fantastic and it has transformed our lives.

To celebrate we are having a private event to celebrate my birthday and to thank those that have helped us. Instead of gifts, except for Tony :) - we are asking friends to donate to kidney research.

We want to thank all the friends and strangers who have prayed, loved, and encouraged us. Thank those that provided practical assistance to get me to appointments, church and cafes when I couldn't drive. Those who provided meals and those who provided financial assistance. Your generosity has humbled, overwhelmed and encouraged us.

Thank you to the dialysis team at Blacktown Hospital who got us through the first three years with kindness, care, laughter and expertise. 

Thankyou to Dr BB (Nephrologist), Dr RB (Endocrinologist) and Dr MH (GP - the brains trust who holds all my medical knowledge together), who do and will continue to provide compassionate, thought out and knowledgeable care to me. To Prof HP (Transplant Surgeon), and Dr DD (Vascular Surgeon) who worked together to save my leg, and maybe my life, after a complication post transplant.  I have been blessed by all these incredible  clinicians.

Also to the Transplant Team at Westmead Hospital whose knowledge and expertise resulted in a successful outcome. All the clinicians are kind, knowledgeable, friendly, approachable and importantly incredibly thorough and attentive to details. Nothing was to much trouble. Thank you also for respecting my nursing background and trusting me with early days off from the clinic so we could sleep in, knowing I would come in if I was worried. 

Thankyou to my amazing husband Tony who has born the brunt of the many challenges we have faced over the last four years.  I honestly believe I wouldn't be here without his love, care, patience and physical strength. He has more than lived up to 'for better and for worse, in sickness and in health and to love and to cherish' , and I have flourished because of it.

Special thanks to the donor and their family for gifting me this kidney despite their grief in losing someone they loved. I cannot find adequate words to explain what an incredible positive change it has brought to mine and Tony's life. 

 All monies donated will go to Kidney Disease research at  Kidney Health Australia.

 

 

 

 

My Updates

The beginning of thanks,

Thursday 17th Nov
Thanks to Welly, Claudia and Scott for your kind words and generous contribution, I really appreciate it. Thanks for kicking off my fundraising.

xx Bel and Tony

Thank you to my Sponsors

$500

Anon

Thanks for raising awareness of the need for donors and for demonstrating the life-changing results for recipients.

$105.50

Scott Broadway

So encouraged by your, and Tony's, faithful witness through all of the ups and downs, and countless challenges, of how love acts in the face of adversity, struggles, and personal trials. Of course, one of the results of it all is the greater platform from which the two of you can now better teach your friends and call us to mirror what we have seen in your lives, to the benefit of others! So grateful for the miraculous which has been made manifest in your life, Bel, and blessed by the opportunity to contribute to this cause on your behalf. Regretting the distance between us all which makes being physically present at the Westival an impossibility, I send so much love from Nashville.

$105.50

Anonymous

$105.50

Andrew

Bel, I have been so impressed by your strength, resilience and faith through this season in your life. What a blessing and comfort it must be to have had Tony by your side. Thank you for your continuous positivity that you have shared with us during your challenges.

$105.50

Helen & Cliff

Dear Bel and Tony, You have been an inspiration to us both and we are so pleased that the transplant has been a great success. It's so wonderful to hear you sing again, Bel! Helen & Cliff.

$105.50

Peter Lipsett

$105.50

Kim And Robyn Oates

Bel and Tony, You are both inspirations.

$105.50

Margo Peri

Dear Bel, A kidney transplant that has changed your life to normality again. The best birthday present ever!! Happy birthday, and good luck in everything ahead. Margo Mxx

$105.50

Suren And Dileeni

$84.40

Amanda Dunn

Beautiful words Bel, of honour and thanks to the many who have been with you on the journey. You are the champion in this story, the lead role, the hero and you are amazing. I’m so glad you are doing so well now. Much love, Welly

$84.40

Julijana Trifunovic

What a journey you have been on.Im so happy you now have a kidney and life is better. Love ya. X

$84.40

Justin Moffatt

Yes! We admire you Bel. You, and your faith.

$63.30

Simone & Greg Murphy

Well done Bel on making it through such a difficult time and Congratulations on your Birthday, love always Greg, Simone & Ryan :) xxx

$52.75

Amanda Crowfield

Dearest BS (well you used to be!) Happiest of birthdays, and I couldn't think of a better way to celebrate and honour your birthday than your "Red Westival" and the opportunity to donate here. I hope you have a wonderful day! I will be with you in spirit. Much love, AF (well I used to be!)

$52.75

Derek Smith

$52.75

Kathryn Delaney

You are an inspiration to me Bel.

$52.75

Kylie Stanton

happy birthday beautiful bel ❤️❤️❤️

$52.75

Doug Riley

Love you Bel

$52.75

Alli & Steve Lewis

Here’s to you Bel, our lovely friend, and all those who will benefit from a new kidney!

$52.75

Xioli Narvaez

$50

Claudia Chambers

Great Mel -am sorry to miss the Westival, claudia x

$50

Graham Vant

Hi Belle all the best regards graham and annabelle

$50

Deb Earnshaw

Happy Birthday Bel, Much love to you and I hope we can catch up soon

$42.20

Will Chivers

Such a great cause, Bel. You’re such an encouragement to me personally. I hope the event is a great success!

$42.20

Marcel Koolhoven

Hey Bel You have your faith and your determination to beat this ! Your mental strength has left all of us in disbelief! You helped me in my darkest years and I hope somehow I gave you some help too ! With Tony by your side and family and friends you have made it to the end ; stronger than ever ! So proud of you Bel ; love you 😍 Marcel xxx

$10

Anonymous